[personal profile] literally
What are Some Common Misconceptions?

1. If a person doesn’t have celiac disease then they don’t need to remove gluten from their diet

2. The gold standard test for celiac disease diagnosis is an intestinal biopsy. If that is negative, there is no need for a gluten-free diet, regardless of blood testing or symptoms.

3. If their lab tests are negative (for either celiac or gluten sensitivity) then they are fine to continue eating gluten.

4. If a person has no digestive complaints and/or is not underweight, there is no reason to test them for gluten intolerance.

What is the Truth

1. If a person doesn’t have celiac disease, that doesn’t mean that they are not gluten sensitive. Gluten sensitivity affects a minimum of 10 times the number of people who have celiac disease. A conservative estimate puts that at 20 million Americans suffering with gluten sensitivity.

Considering it is known to decrease life expectancy, it is vital that we not miss the diagnosis of either of these debilitating conditions.

2. An intestinal biopsy is not a sensitive test. It requires marked damage of the small intestine before it shows positive. Dr Fasano, one of the leaders in celiac research, has stated quite recently that he too no longer considers it the gold standard; not even close. (That’s the two of us pictured at a conference.)

3. Even with the recent improvement of lab tests, we still suffer from a lack of sensitivity. The newest tests are a leap forward, but what really is the gold standard?

Many of us feel that it is embarking on a 30 day gluten-free diet. One must be 100% gluten-free for this to work – no cheating.

When done correctly, this free home test, can very clearly tell you what your body thinks about gluten.

4. All too ofte
n, doctors are locked into the notion that an individual with celiac disease will present with severe digestive problems. While that certainly can be the case, more often the individual has mild or absent digestive problems but instead complains of skin problems, fatigue, depression, migraines or joint pain, to name but a few.

It is truly maddening to hear that a doctor refused to test a patient solely because they did not have digestive problems or they were overweight – another misconception.

 Rest of the great article on gluten intolerance and increasing doctor awareness here.
[personal profile] literally
 This has nothing to do with gluten-free, other than the brand of protein bar I was googling for (Quest Bar). One of the reviews of it annoyed me, because the reviewer didn't understand the differences between non-carb sugar substitutes, and claimed that Stevia and Lo Han Guo were artificial. This is not the case at all, but I'm not going to provide links anyway on this one because it really isn't that hard to use a search engine. I don't give a damn about what Marion Nestle says about Stevia either, especially when it comes to how the product is processed, by her standards, chocolate and other goods would also qualify as processed junk foods, and sorry but you can't compare the highest quality chocolates made with pastry chefs and confectioners in mind with the average junk food on the market, you just can't.

 As for sucralose, that's different, it's lab-made, and it's one of the reasons why I plan on at least trying to make a non-sucralose homemade clone of the Quest bar, even though the amount of it in those bars are pretty small. There are a lot of good things about these bars, but they should perhaps have used Stevia in addition to Lo Han Guo, or just more Lo Han Guo in general instead of sucralose, but I don't run the company. On the other hand, they're the only good protein bar out there that is filling and is not full of carbs, gluten, or soy, and I can't deny I plan on buying myself a box or two of them soon anyway. They taste great, despite some minor problems I have with chicory root. But in the meantime, I'll be working on a recipe for a nut butter and whey based bars that are just as filling. 


Very Gluten Free

November 2013

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